Tag Archives: hysterectomy

Endometriosis Surgery – Check!

Where to begin? The past two weeks have been insane. Chalk full of unexpected blessings, changes, and trauma.

I flew to Gig Harbor, WA almost 2 weeks ago to have surgery by Dr. Mosbrucker, an endometriosis specialist, and Dr. Pai, a general surgeon she works with. My Mom accompanied me for the entire trip while my hubby took time off of work to be with the kids.

The surgery was expected to be 3 hours long. I was in pre-op, getting my IV placed by one of the nurses, when the anesthesiologist came in and introduced herself. She began to tell me, in her kind, nonchalant way, that I would be having the largest endotracheal tube placed down my throat, and it would be placed very deep into my left bronchial, in order to keep mainly just my left lung inflated while they operated on my diaphragm on the right side. She continued on to say, that, oh by the way, I would also need an arterial lined placed for the surgery (this was to be placed after I was asleep, but before the surgery started), and also a second IV. I didn’t have a huge amount of time to process this info, thankfully. I texted my hubby that I loved him, I gave my Mom a hug, and to the OR I went.

The bruise left over from my arterial line. Sometimes I think my insides are healing up faster than this yucky bruise.

Ironically, in the weeks leading up to my surgery, I had told a handful of people that if I made it out of surgery without a chest tube, I’d be happy. After all, chest tubes are super painful. And not only that, but it would mean that the surgeon didn’t have to perform a full resection on my diaphragm, leaving my thoracic cavity untouched. Ultimately, it would mean that the endometriosis hadn’t grown all the way through my diaphragm, and that the surgeon had been able to essentially “scrape” it off instead of cutting it out.

I had also hoped that I was completely wrong about all the symptoms I had been having up to that point. I had hoped that perhaps my endo wasn’t all that bad, and that maybe my surgeon could save my ovaries and uterus. I made a point to let her know that I was just fine with not having a hysterectomy, if she thought things were good enough to save it all. She said she would use her best judgement, and I was fine with leaving the decision with her.

Let’s just have a good laugh right now about how delusional I was about the status of my endometriosis. Let’s just get the details out there: My surgery was seven hours long, not 3. I had FULL thickness endo growing through my diaphragm. I did indeed wake up with a chest tube and resection of my diaphragm. My surgeon said I had more endo on my diaphragm THAN SHE HAD EVER SEEN (the good news is that it wasn’t in my thoracic cavity!). I had full thickness endo growing through my small intestine, close to the illeocecal valve, and so therefore had a small bowel resection. I also had endo on my colon, which was removed. I apparently had endo all over the place, so my surgeon made the decision to do the hysterectomy. There is one bright spot – the better looking ovary, my left ovary, was covered with a lot of endo, so she literally cut about half of my ovary out and sutured it back together. Apparently ovaries regenerate like livers, so it’s supposed to grow back. Therefore, I get to keep an ovary and do not need hormone replacement therapy.

Instead of staying in the hospital overnight, I wound up in the critical care unit for two nights and then was transferred to the med surg unit for two more nights. My surgeon wouldn’t let me leave Gig Harbor for four more additional nights, so my Mom and I had to book another Airbnb, switch to a later flight, and rent the car for four more days. It was not cheap to do this!

I don’t have a lot to say about the hospital stay except that I flooded my room while taking a shower. Major OOPS! I had put a towel on the floor and didn’t notice that it was covering the drain. All of the sudden I heard my Mom shout from the other side of the door “Emily! There’s water out here!” Enter the nurse, the charge nurse, the nursing aide, and environmental services to clean up all the water outside the bathroom (it was more than an inch deep). I was so mortified that I cried, but the nurse thanked me for giving them some excitement that afternoon.

As far as views from a hospital room goes, I’d say this one was pretty good.

When I finally got out of the hospital, the Airbnb we stayed at was really close to the water and they had a beautiful yard that we got to look at through a sliding glass door. My Mom was a wonderful companion and excellent nurse. She was working on knitting a sweater for my sister, and it was the most complicated pattern ever. But it kept my Mom occupied while I slept, or rested, or sat and watched HGTV with her. I was extremely boring to be around! She kept me fed, helped me get out of bed, talked with me, ran to the store for me, and was just generally great to be around. I can’t thank her enough.

I loved the view!

My Mom working on the sweater while we got some fresh air.

I called my kids and hubby twice a day and we video chatted each time, which was a huge blessing. I was gone from them 10 days, which is just about forever when your kids are little. I missed them so much. (I cried about that too.) My hubby always seemed to be in good spirits and things seemed to be going well with the kids. His Mom came over a few times to help out, and my sisters came as well. One of my sisters brought a meal, which was helpful.

I did end up at the ER a day after I got out of the hospital. I had a sudden migraine occur, and I’ve never had a migraine. After medicating, resting and icing, and with no success– I went to urgent care. After they learned of my major surgery they wouldn’t touch me with a ten foot pole. So we went to the ER where the ER doc insisted on a head CT. I knew they were going to force me into one and I was very prepared to refuse it until I remembered that I had gotten 4 Lovenox injections while in the hospital. And suddenly, a very slow leak or bleed in my brain sounded a tiny bit more plausible. The ER doc told me that if I did have a brain bleed and I refuse the CT scan, I would simply go home and die (I didn’t care for her much). She was pretty pushy, and I felt miserable. So I got the head CT, which ended up looking “perfect.” The nurse taking care of me pushed a med for my migraine way too fast and it gave me a horrible panic attack – my skin suddenly felt hot and I just wanted to jump out of my skin. It was a ROTTEN experience and by far the worst part of the trip. The nurse then gave me some IV Benadryl which helped negate some of the yucky side effects, but not all. I was very, very discouraged when my Mom drove me home from the ER late that night. After everything I had already been through, the whole experience felt traumatic. My ability to handle stressful things was pretty poor.

We did do something fun while in Gig Harbor – we rode on the ferry the afternoon prior to flying home. After going up two flights of stairs I was in pretty major pain, but it was a new experience with beautiful scenery. (I should add that my Mom discovered an elevator on the ferry after that!).

Mom and I on the ferry.

We finally made it home close to 11 pm Friday night. The next day I realized that I had a UTI – thank you hospital foley catheter! I mean, I understand why I had to have it (no one gets up and goes to the bathroom with a chest tube in place), but still, it was frustrating all the same to be back at urgent care, only this time in a different city. And I’m grateful for antibiotics, but I don’t tolerate them very well.

All in all, I had NINE incision sites (my Mom said it looked like I was in a knife fight) – and I have very little pain today. Things seem to be healing up quickly! My abdomen/pelvis feel GREAT. I have had food intolerance only one time so far, and even that it questionable. So – I feel very hopeful for the future!

 

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Filed under Endometriosis

Consultation Date Moved Up!

Miracle of miracles- I got an appointment with the endometriosis surgeon moved up to next month!

The surgeon wrote me back and said that according to my symptoms, I probably have diaphragmatic endometriosis and also bowel endo. She said that she would work with a general surgeon, who would either scrape it off my bowel (colon) or, if the endo is full thickness, they will do a bowel resection. As for the diaphragm endo, she said it’s probably not full thickness yet (I agree, and I hope to keep it that way until surgery!). It was nice to have confirmation that someone else with experience in the field agreed with my assessment of my symptoms.

My original appointment was for October, which then got moved up to July, and now to April.

I am still living with daily pain in my shoulder and upper torso – under my ribs and into my back. It’s tolerable now but I’m dreading future periods. 😦  I’ll be fine until my surgery date though as I don’t get endo in my lung cavity.

In the meantime, I’ve been thinking a little bit about hysterectomies. I’m curious to hear what the surgeon thinks about the topic. I’m still all over the map and need wisdom. I still cry every time I think about it…

Thanks for your prayers! God answered and I am grateful to get in much sooner!

 

 

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Filed under Endometriosis, Pain

Our Ongoing Home Reno & Other Updates

Hey there!

Here’s a little update on life for us these days.

House

We moved to our new fixer upper home almost 7 months ago. I joke with hubby that we ought to just dig a big hole in the backyard and start throwing money into it, because it has been one giant money pit! A mold report that came back showing high levels of (non toxic) mold less than a month after we bought the house really pushed us to replace the areas were there had been water exposure (floors, under kitchen sink) much faster than we had originally planned.  And then the snowball just started rolling as one thing led to another. That’s home renovation for you, I suppose!

Here’s a list of some of the things we’ve redone since we moved in:

Tear out back deck (was structurally unsafe).

Deck (removed).

New carpet in family room and bedrooms:

I didn’t really have any “carpet” pictures, but you can kind of see it here.

Removed wall between dining room and kitchen:

Before. (This wall drove me nuts because I couldn’t keep track of the kids!)

After. I love it!

Laminate in kitchen, fireplace room, hallway and master closet:

Closet doors (two sets), screen door, side garage door:

Tile floors in laundry room and kids’ bathroom:

I tried to pick tile that matched the laminate.

Replaced Kitchen counter tops, sink (chipping), faucet & garbage disposal (leaked whenever running):

Before. This wasn’t too long after we moved in.

Before.

After. My inner clean freak is very happy with having quartz counter tops now!

Tile back splash in kitchen (which we had to add because there was a big gap between the counter tops and the wall):

Pulled out melamine desk/cabinets and put in smaller desk area with upper shelving:

Replaced furnace and A/C (yes we wanted to cry when we learned we needed to replace BOTH):

New A/C.

Dishwasher (which died right after the furnace and A/C – more crying, hehe). New dishwasher will be here in two weeks.

Replaced fridge (died on moving day), stove and microwave.

Painted bathroom vanities and kitchen cabinets:

Painted ENTIRE house (including ceilings).

Replaced almost all light fixtures and 2 out of 3 fans (we saved the only one that worked).

Whew! That wasn’t even a comprehensive list. And what’s sadder is that the “to do” list is still a mile long! The bottom line, however, is that we LOVE living here. We love the space (1/2 acre), the neighborhood, the proximity to hubby’s work, and also the fact that we live super close to my in laws! (And as a side note, both my parents and my hubby’s Dad were instrumental in helping us get a lot of the above list completed!)

Kids

Josh & Rachel are doing fine. Josh is just over 3 and Rachel is 20 months. I sure do love them and enjoy my days with them. I know everyone else has adorable/smart/funny kids, but some days I seriously wonder which state penitentiary my kids will end up at–because they can be quite devious! Some days Josh and I really do battle it out. I’m no marshmellow Mom in any sense of the word, so I often have to remember to look for ways that I can answer “yes” instead of “no.” Rachel is very determined and doesn’t give up easily either, but she does have much shorter tantrums, which I am thankful for!

I like to remember the following so please tune out if this is crazy boring (I imagine it would be to most):

Josh wears 3T clothing and wears a an 8/9 shoe. He weighs 31.6# (No joke, he’s weighed exactly 31.6# the last several times he’s asked to hop on the scale!) and a few months ago he was just over 3 feet tall. We took away his paci back in April and it wasn’t a big deal at all (we were shocked! And thankful…).

Rachel wears 18-24 months clothing and is somewhere between a size 5 or 6 shoe. She is only a few inches shorter than Josh. She still doesn’t have to many words, but she’s working on it every day. She’s been in a size 5 diaper for a while. I use Pampers diapers and water only wipes or else she tends to be prone to really bad diaper rash.

Don’t be fooled. They’re wanna-be felons, I tell you! 🙂

Weight Loss

I wrote a while back about experiencing unintended weight loss. I’m happy to report that out of the 16# I lost, I gained 7-8# of it back and that seems to be where things have settled. I’m not unhappy about it, but I do wish I had a better appetite most days so that cooking would feel less like a chore.

Endometriosis

I don’t really want to go on and on when it comes to this topic. The synopsis is: The endo does seem to be back. Some months are bad and some are okay. I cut out caffeine back in February which seemed to really help with pain levels. I still seem quite unable to get pregnant without intervention (IVF), so that’s a drag. At the same time, I have little to no desire to go through IVF again (not that we could afford it right now after all these home repairs!). I’ve been thinking about my options for when things DO get consistently bad, pain-wise. One option is to see a specialist who would excise all endo (cutting it out, rather than burning it off) and see how far that gets me. Another option would be to do a hysterectomy and also have current endo excised. This may still not alleviate pain (endo grows back easily and hides, so that it can be tricky even for specialists to find) and I still may require further surgeries. In all honesty, I’m hoping avoid any surgeries at all, because the frequent pain I get from adhesions and scar tissue following surgeries is off the charts.

Well I think that covers some of the basics! Thanks for sticking it through the post!

 

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Filed under Baby, DIY, Endometriosis, Finances, Infertility, IVF, Motherhood, Pain, Parenting, Toddler